Is BeingSeizure Free,
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26 posts for 26 miles
26 posts for 26 miles
4/23/2017 0 Comments Mile 2. Coaches and Doctors“What do I know?” We ask ourselves this question every day. Our days are spent applying what we know to help accomplish the things that lay before us. Days are shorter or longer depending on how much we help ourselves. We can all relate to this. I am confident to say that without good coaches and doctors my days would be endless!
Coaches are a source for providing tested training programs and motivational pep talks. Doctors are a source for providing successful treatment options and medical explanations. Obviously, whether you are running a marathon or living with epilepsy you will have happier days if you have great coaches and doctors.
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The gun goes off and you are caught up in a mad dash as everyone starts running along the course. A doctor tells you that your child has epilepsy and a similar rush to search for answers occurs. These experiences tell you to slow down and not make any mistakes, however your heart tells you to run with the emotion and everyone else be damned. That is when you need to err on the side of experience. The first few weeks dealing with Epilepsy should be spent gathering information and support from doctors, friends and family. Likewise, the first mile of a marathon should always be targeted at your Marathon Goal Pace (MGP) or slower. Try hard to prevent the chaos of an emotional start from straining the marathon journey ahead of you. Once outside of the Hospital, Leanna and I set off to learn about something we knew little about. A few decisions early on helped make a bad situation better. 3/26/2017 1 Comment The Starting Line…“Kyle, have you noticed anything different about Freeman lately?” Leanna asked this question the night before we were set to move our family from San Jose, CA to Phoenix, AZ. I had not noticed anything, so I told her to go to bed, as we had a long drive ahead of us in the morning.
As I packed the final pieces into our family van I noticed Freeman’s epilepsy for the first time. Freeman was standing in the driveway, but motionless and unresponsive. He was having what we would soon learn were Absence Seizures. They lasted 15 to 25 seconds and would occur every 30 minutes. At that moment, everything seemed to stop. Our 3-year-old son had started his long journey with Epilepsy. The starting line is always the same. You are about to do something new or challenging. You need to be ready!
But what if you weren’t ready? How would you feel if you were forced to run a Marathon you didn’t train for? That is how we felt when our son Freeman began having seizures on June 27th, 2008. Freeman was starting a long journey and we were not prepared. Today I am asking you to join me over the next 8 months... I will share 26 stories on topics that I have come to know a lot about: Epilepsy and Running. Yes, a story for every mile I will run on November 5th, 2017 at the New York City Marathon. I will be running on the Epilepsy Foundation team to help bring awareness and raise funds for those affected by Epilepsy. I will be writing this blog to help others. Hopefully my experience with epilepsy and running can help others be better prepared for their own journey. |
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